Living with TN is hoping that an increase in pain is a temporary blip – a change in weather, a medication adjustment, a prolonged source of stress – and not the predictable outcome of progression that my body seems to favour. The logical side of my brain considers all of these possibilities. I know that […]
Recent Posts
8 Years With Trigeminal Neuralgia
Anniversaries can fucking suck. I know that’s a bit of a harsh opening, but it’s true. July 13th, 2021 marked 8 years of living with Trigeminal Neuralgia. 8 years – 96 months – 2920 days – 70,080 hours of living with this monster. No matter the measurement of time I choose, there’s this weird phenomenon […]
Working Through The Last 6 Months
I’m in my feels today. It’s one of those days where I’m overtired, stressed, and in pain, which means that things are just a little harder to deal with. The air feels heavier, the sky looks darker, the vibes are not immaculate, and the weight of the world feels greater. I’m pretty sure if I […]
Living With Creativity
I have never described myself as a creative person. I’m drawn to creative activities like writing, dancing, and making music. However, I, as a person, struggle with creativity. The left side of my brain is incredibly dominant; I’m analytical, methodical, and I measure things quantitatively, which means that I often impose rules and regulations upon […]
Rare Disease Day
February 28th is Rare Disease Day, so I thought I’d take this opportunity to talk about my rare disease – Trigeminal Neuralgia. It is estimated that there are more than 300M people worldwide living with a rare disease. 4.3 in 100,000 of those people have TN. Trigeminal Neuralgia is characterized by excruciating pain, typically on […]
Go Ego
Over the holidays, Jon and I decided to record my cover of “Go Ego” by Eight And A Half. I wouldn’t normally dedicate a whole blog to a song I’ve been working on, but this isn’t a normal song to me. “Go Ego” followed me through the darkest and most vulnerable period of my life. […]
A Quarantine Update
Hi Everyone, I think it’s about time that I did an update-style blog! To be honest, I’ve been trying to write a blog for the last month and a half, but it just hasn’t worked out. Between exhaustion from the TN event, some unresolved feels, and trying to manage life during a pandemic, writing hasn’t […]
Living With Vulnerability
Writing has always been my outlet. It’s how I learn, it’s my favourite way to communicate, and since becoming sick, it’s become a way for me to process the toughest of feelings. I never really planned on sharing my writing with anyone, though; that would’ve required being vulnerable and it hasn’t always been easy for […]
The Rollercoaster Of Recovery
Well, it’s been one year since I had the surgery that drastically changed my life. Recovery has been an absolute roller coaster to say the least; every up has had a down, every twist has had a turn, and every bit of “full-speed” progress has required a brake. There have been times where I felt […]
Finding Stability
Exactly one year ago, I was in the hospital sicker then I’d ever been. After being diagnosed with Serotonin Syndrome, the decision was made to cold turkey me off of over 50% of my medications. I spent 8 days in hospital going through such intense withdrawals that I thought I was going to die. That […]