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A Life With Trigeminal Neuralgia

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Category: Neurosurgery

November 8, 2021March 29, 2023Mackenzie Lea

Living With Balance

Living with TN is hoping that an increase in pain is a temporary blip – a change in weather, a medication adjustment, a prolonged source of stress – and not the predictable outcome of progression that my body seems to favour. The logical side of my brain considers all of these possibilities. I know that […]

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July 15, 2021July 15, 2021Mackenzie Lea

8 Years With Trigeminal Neuralgia

Anniversaries can fucking suck. I know that’s a bit of a harsh opening, but it’s true. July 13th, 2021 marked 8 years of living with Trigeminal Neuralgia. 8 years – 96 months – 2920 days – 70,080 hours of living with this monster. No matter the measurement of time I choose, there’s this weird phenomenon […]

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July 2, 2020July 2, 2020Mackenzie Lea

The Rollercoaster Of Recovery

Well, it’s been one year since I had the surgery that drastically changed my life. Recovery has been an absolute roller coaster to say the least; every up has had a down, every twist has had a turn, and every bit of “full-speed” progress has required a brake. There have been times where I felt […]

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April 14, 2020April 14, 2020Mackenzie Lea

Finding Stability

Exactly one year ago, I was in the hospital sicker then I’d ever been. After being diagnosed with Serotonin Syndrome, the decision was made to cold turkey me off of over 50% of my medications. I spent 8 days in hospital going through such intense withdrawals that I thought I was going to die. That […]

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February 18, 2020February 18, 2020Mackenzie Lea

Fighting For 22

When I was 10, I would try to imagine what my life would look like as an adult. It excited me to think about all the opportunities and responsibilities I would soon get to experience. Growing up couldn’t come soon enough.   When I was 13, I thought I was invincible. I thought that through […]

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November 5, 2019Mackenzie Lea

Defining Yourself With A Chronic Illness

There’s a phrase that’s tossed around the chronic illness community and it’s something I think about a lot. “Don’t let your illness define you.” Perhaps because I share my story quite often and quite graphically, I’ve had many people tell me that I’m obsessed with my illness. While I don’t think obsessed is the right […]

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October 3, 2019October 3, 2019Mackenzie Lea

3 Month Post-Op Update

I’ve got to say, it definitely doesn’t feel like it’s been 3 months since the “Great Head Snip of 2019”. On one hand, it feels like it’s been much longer; I often reflect on how much I’ve accomplished since surgery and it generates this allusion that the surgery happened many months ago. On the other […]

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August 28, 2019August 28, 2019Mackenzie Lea

Neuro/2 Month Post-Op Update

Hi Everyone! I wanted to do an update, as I was just at the neurologist yesterday AND because we are nearing the 2 month post-op milestone. I thought about waiting until Monday (the actual 2 month mark), but we are moving out on Sunday and I didn’t think I would have much time then. So […]

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August 2, 2019August 2, 2019Mackenzie Lea

One Month Surgery Update

Well, it’s been exactly one month since brain surgery! I’ve been getting lots of questions and requests to do an update and I think that this is an appropriate day to do one. To get right to it, things have been up and down. I definitely didn’t expect my healing to be linear, but I […]

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July 11, 2019July 11, 2019Mackenzie Lea

The Great Head Snip of 2019

On July 13th, I will have been living with Trigeminal Neuralgia for 6 years. For some reason, it doesn’t seem like it’s been that long. You see, when you live with a chronic illness, it’s vital that you take things day by day… and that’s exactly what I’ve been doing;  fighting against my own body every […]

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