February 28th is Rare Disease Day, so I thought I’d take this opportunity to talk about my rare disease – Trigeminal Neuralgia. It is estimated that there are more than 300M people worldwide living with a rare disease. 4.3 in 100,000 of those people have TN. Trigeminal Neuralgia is characterized by excruciating pain, typically on […]
Tag: Rare Disease Day
Rare Disease Day
I’m often told that “I don’t look sick” or that “I look pretty good for someone whose in pain”. Unless you pay close attention, you wouldn’t notice my face wince or me holding my breath until the stabs in my face stop. On one hand, sometimes being invisible is easier. I know that when I […]